Mission context

Nous sommes une association à but non lucratif créée pour soutenir les personnes atteintes de la maladie génétique rare appelée KCNQ2.

L’association KCNQ2 France Développement a été créée pour faire connaître la la maladie , tant dans sa forme sans épilepsie néonatale que dans sa forme avec épilepsie néonatale.

Nous offrons un soutien complet aux familles, des conseils, des orientations vers des consultations médicales dans des centres experts. Prochainement nous allons ouvrir un lieu d'accueil pédagogique et éducatif pour des enfants ayant des troubles du neurodéveloppement (autisme, troubles de l'attention, déficience intellectuelle, maladie génétique...,).

Expected deliverables

🔒 These details are reserved for members of the community.

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Obligations

Obligations of results

Mission success indicators

Avoir obtenu au moins un financement.

Start and end dates

🔒 These details are reserved for members of the community.

Dès que possible

Estimated mission duration

6 mois renouvelable

Workload and rhythm

Flexible

Freelance budget

🔒 These details are reserved for members of the community.

Pourcentage sur la subvention obtenue

Assignment location

Distanciel

Planned travel

Non

Required tools or licenses

Pas de logiciel spécifique

Desired skills or expertise

Rigeur, curiosité, motivation

Expected experience level

Without experience

Degree of autonomy

Totalement autonome

Team size

🔒 These details are reserved for members of the community.

1 à 5 personnes

Reference person or manager

🔒 These details are reserved for members of the community.

La secrétaire de l'association

Follow-up rituals

🔒 These details are reserved for members of the community.

Point mensuel

Used to working with freelancers

🔒 These details are reserved for members of the community.

Occasionally

Association KCNQ2 France Développement

Nous souhaitons faire connaître cette maladie, trouver des moyens d’aider les familles. Nous avons ouvert une structure éducative afin d'accueillir des enfants avec des troubles du neurodéveloppement.

💡 Public service or utility

This structure is public (local authority, government agency, ministry, etc.) or its mission is of general interest: energy, water and waste management.

Website
Nonprofit organization
< 15 persons
Handicap

Association KCNQ2 France Développement did not yet communicate its impact measurement.

This structure did not communicate to us the labels or certifications that it was able to obtain.

Association KCNQ2 France Développement

💡 Public service or utility

This structure is public (local authority, government agency, ministry, etc.) or its mission is of general interest: energy, water and waste management.

Website
Nonprofit organization
< 15 persons
Handicap

Association KCNQ2 France Développement did not yet communicate its impact measurement.

This structure did not communicate to us the labels or certifications that it was able to obtain.

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